In EB’s Most Severe Form, Many Babies Don’t Live To Celebrate Their First Birthday
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EB (epidermolysis bullosa) is a genetic blistering skin disease that causes a baby’s skin to blister and peel off creating extreme pain and death in its most severe forms. EB is caused by a gene mutation that creates a very weak bond between the baby’s skin layers in the epidermis and dermis. Friction, pressure, and heat on the skin causes blisters and skin loss. Even a hug from mom or dad can cause life-threatening blisters and skin loss, and extreme pain that can’t be controlled with our best medicines. EB affects both genders and all ethnicities equally. It is not getting the attention it needs to find a full-body cure.
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No Baby Blisters Is The Voice For Over 500,000 Worldwide Suffering From EB
Help us rescue EB babies from the terrible pain and death caused by EB. Mutated genes cause the skin to blister off resulting in extreme pain, infection, scarring, amputations, and death. A full-body cure is urgently needed. *Pictured is No Baby Blisters’ spokesperson Baby Mirachael
In EB’s Most Severe Form, Many Babies Don’t Live Beyond A Year
Life expectancy for those who do live is often less than 30 years and filled with blistering, terrible pain, infections, scarring, itching, amputations, bullying, and catastrophic medical bills. *Pictured is No Baby Blisters’ spokesperson Baby Nofer
Like A Butterfly’s Wings, Their Skin Is So Fragile, A Simple Touch Can Cause Severe Pain. Hugs Shouldn’t Hurt
Easily injured skin creates severe pain, blisters, infection, and scars. Forever bandaged, their skin is an inescapable cocoon separating them from their parents’ loving hugs. *Pictured is No Baby Blisters’ spokesperson Baby Ashley
Why Hasn’t This Disease Been Cured?
Orphan diseases are conditions affecting fewer than 200,000 people nationwide, like EB, Cystic Fibrosis, Lou Gehrig’s Disease, or Tourette Syndrome.* Cures for orphan diseases, like EB, have historically gone unfunded by big pharma and government.
Numerous type of creams to treat wounds are approved or being developed, but no true cure for the entire body. What you see on the skin is also happening on the inside. A full-body systemic cure is needed.
*National Institutes of Health
